Wednesday, November 4, 2015

Clay goes to school!

It's been a year...yet again...since I've sat down to update this blog. We now have a little 4 year old man with NO trach, a head full of beautiful hair, and all kinds of spunk.

He has progressed so much since his trach decannulation in June. He talks and talks and talks all. the. time. Lol. He just seems to have so much more confidence...it's great. We decided to wait and see if his trach stoma would close up on its own after decannulation...it didnt.. So we had the revision done about a month ago and it's healed up so nicely!  Now we are officially DONE with the trach saga. It's crazy ain't it? How something can be such an integral part of every day life but after we got rid of the ol' thing we've hardly thought about trach changes, trach care or suction machines since. HALLELUJAH!

Now we're on to big boy things..like SCHOOL! Omg..I'm really having a hard time processing this. His first day is tomorrow! We're starting out slowly..2 hours, 2 times a week.. He's a bit anxious about it but we've really been talking it up and I know he will love it once he gives it a chance. I really feel like he needs the social interaction and the time away from me to help build up his confidence and independence even more. He will do great, I know.

One thing that does worry me is the germs and the crud-catching that comes along with school. A regular ol' cold for a regular kiddo can really take a toll on Claybug..we found that out at the beginning of the year when he caught RSV and we spent a couple of weeks in the hospital and back on the ventilator. I really, realllllly hope nothing hits him that hard this year..it's a different ballgame without the trach and the "easy" access for extra help. Fingers crossed we can sail through the season unscathed.

I feel like there's so much more to update on but that's all I'm getting to tonight. Gotta get ready for our big day tomorrow!!! 

Peace and love, dear friends!

4 comments:

  1. awesome! good luck Clay buddy! Cecilia had to take her time to get used to it but now she LOVES it and I don't think she even notices us after we get past those gates these days! I'm pretty sure it's harder on me than it is on her- you might find that too- so good luck mama!

    ReplyDelete
  2. Hi I just ran into your blog as I was researching for babies with trach... I just had my baby Jacob this March 2016 he is also a CDH baby. He was dry sick Drs didn't think he would make it.. But God had a different plan and Jacob has fought this very tough battle. He's 3 months old. And it already feels like an eternity. Reading your blog makes me feel like this is only the beginning. I was researching babies with trach cause it's beginning to be a conversation Drs keep telling me how it would be best. I'm so scared of it. I'm scared that I won't care for it properly all kinds of things run by my head. Can you share a little bit with me on how you gained the confidence and how old was your lil prince when you decided to do the trach. God continue to bless him and you n fam and thank you for sharing your story

    ReplyDelete
  3. Hi I just ran into your blog as I was researching for babies with trach... I just had my baby Jacob this March 2016 he is also a CDH baby. He was dry sick Drs didn't think he would make it.. But God had a different plan and Jacob has fought this very tough battle. He's 3 months old. And it already feels like an eternity. Reading your blog makes me feel like this is only the beginning. I was researching babies with trach cause it's beginning to be a conversation Drs keep telling me how it would be best. I'm so scared of it. I'm scared that I won't care for it properly all kinds of things run by my head. Can you share a little bit with me on how you gained the confidence and how old was your lil prince when you decided to do the trach. God continue to bless him and you n fam and thank you for sharing your story

    ReplyDelete
  4. SO happy to read this....I followed your adventures a few years ago....then I decided this morning in in my french corner of south france to look if there is not some news ! THen....AMAZING NEW !!! I am really happy to read that your little boy does not have any Trach !!! and goes to school...

    My daughter is still on oxygen 24/24 . SHe tries to walk but it is difficult..But her needs of oxygen are low. We hope it will be better and better. ANd that she can eat without gastrostomy soon.

    I send you much love from France !!!

    ReplyDelete